MedEdCenter Incorporated is a nonprofit 501(c)(3) Corporation dedicated to:
- Concise and relevant information to start patients on their journey of healing
- A collection of patient oriented resources on lung conditions and methods to access specific associated foundation resources
- Resources for clinicians to facilitate treatment initiation and provide patient centered education materials on lung disease.
The foundation of this effort is the desire to provide resources for advanced lung disease patients to start their journey towards healing. As more advanced and personalized therapies become available, there are increasingly more complex information landscapes for patients and providers to navigate. The goal of our work is to provide, either directly to the patients or by helping clinicians, the ability to navigate the information and patient focused resources available for their healing. This is an increasingly challenging task given the continuous decrease in time and human resources available to clinicians for educating their patients and the rapidly evolving landscape associated with therapeutics and payer policies. .
Our goal is to to focus on leveraging technology to help direct our patient’s on day one. The first day when we tell patient their diagnosis or day one of the decision to start a specific medication. These pages are designed by clinicians for clinicians to educate their patients.
In addition, the pages try to focus as much as possible on adverse effect preemptive management and correct communication of the side effect disclosure. This is in part motivated by the experience of one of our founders, Franck Rahaghi, MD. His mother had advanced cancer and was scheduled to undergo palliative surgery that may have added to her life and palliated her symptoms. A clinician sat her down and disclosed all things that could go wrong during the “special” anesthesia they planned to use. She strongly objected to the possibility of losing the use of her legs and cancelled the surgery. That “special” anesthesia method was an epidural, which she had had before in childbirth.
Clearly the low probability of the event was not communicated with his mother, who was a published scientist and would have understood this if the information was made available to her in a way that she could have processed correctly. This sad event resulted in many publications by he and his colleagues to focus on correctly communicating adverse effects and being proactive about managing adverse effects. You will find links to these and other articles in the webpages of this site.
Our focus at this point is orphan diseases: pulmonary arterial hypertension, sarcoidosis, idiopathic pulmonary fibrosis, alpha-1 antitrypsin deficiency, scleroderma and biologics in persistent asthma.
The mission is primarily undertaken through digital and web-based activities
John J. Ghaznavi
Chairman, Board of Directors
After earning a degree in Engineering from West Virginia University, John worked in the public and private sector for six years, but had entrepreneurial aspirations. By the early 1970’s, Mr. Ghaznavi had developed a string of small businesses in trucking, leasing, and warehousing: the first of many successful endeavors. In 1988, Mr. Ghaznavi formed G & G Investments after acquiring and consolidating several struggling glass companies in North America. In 1996, Mr. Ghaznavi was awarded Entrepreneur of the Year in the Master’s category by Ernst and Young, NASDAQ Exchange, USA Today and the Kauffman Foundation. Under his leadership, G & G became one of the largest glass companies in the world with over 10,500 employees. Since these beginnings, Mr. Ghaznavi has developed and managed 23 companies and 32 partnerships worldwide, in sectors ranging from real estate, manufacturing, transportation, and the international distribution of medical devices, oil and gas, raw materials, agricultural commodities, and LED lighting solutions. He has served on the board of many charitable and non-profit organizations, including Carnegie Melon University.
Monica Nasiri-Bray, PhD
Board of Directors
Monica Nasiri has a PhD in Political Economy and Public Policy from the University of Southern California, MA in Economics from the University of Southern California, and a BA in Sociology from the University of California, San Diego. Most recently, she was the Associate Dean of Graduate Programs (MBA and MS Finance programs) for the College of Business at the University of Oregon. Ms. Nasiri started her academic career in 2006 as an Assistant Professor of Economics and Research Methods at California State University, Monterey Bay, where she taught finance and accounting for the Executive MBA Program. While at CSU Monterey Bay, she also served as the Director of the Master of Public Policy Program, in collaboration with the Panetta Institute for Public Policy. She was also the Director of Career Services at USC Price and an Adjunct Professor of Finance at the Monterey Institute of International Studies. She has founded Silk Road Coaching where she has developed an innovative hybrid model of success coaching and consulting to help purpose-driven individuals and organizations solve their problems and level-up their futures.
Farbod Nicolas Rahaghi, MD, PhD
Board of Directors
Dr. Rahaghi received his M.D. and Ph.D. from the University of California, San Diego. His thesis focused on signal processing and time-series analysis from blood glucose data in animals and humans. He completed his residency in internal medicine at Duke University Hospital. He subsequently completed his clinical fellowship in the Harvard Combined Pulmonary and Critical Care fellowship. He is currently a research fellow at the Brigham and Women’s Hospital/Harvard School of medicine. His research focuses identifying imaging biomarkers of pulmonary vascular disease including pulmonary arterial hypertension Specifically he is working with a team of physicians and computer scientists to validate metrics developed from 3D reconstruction of the pulmonary vasculature and identify specific changes in the morphology of these vessels in disease. Dr. Rahaghi brings his experience in medicine and rare diseases to our organization.
Franck Rahaghi, MD, MHS, FCCP
Founder, Medical Consultant
Dr. Franck Rahaghi graduated from the University of California San Diego Magna Cum Laude with a degree in biomedical engineering. He subsequently attended the University of California San Francisco where he obtained his doctorate in medicine. He also concurrently attended University of California Berkeley to obtain a degree in public health and health administration. Dr. Rahaghi completed his internship at the University of Minnesota and in his medical residency at the University of Illinois in Chicago. He completed his pulmonary and critical care fellowship at the Weil-Cornell campus of New York Presbyterian Hospital. He has since been serving as staff attending and clinical researcher at the Cleveland Clinic in Florida. He was named the Scholar Physician of the Year at the Cleveland Clinic Florida and is an Associate Professor of medicine at the Cleveland Clinic/case Western Reserve Lerner College of Medicine. He holds the positions of Director of Advance Lung Disease Program, Director of the Alpha-1 Foundation Clinical Resource Center and the Chairman of the Department of Pulmonary and Critical care. He is a published researcher and lecturer. His fields of interest include AATD, ILD/IPF, Scleroderma, Sarcoidosis and Pulmonary Hypertension. His desire to leverage technology and education of patients and clinicians formed the framework of our approach.
Christine Bexley, MSMIS
Chief Information Officer
Christine received a Bachelor of Science in Computer Science and a Masters in Management Information Systems from the University of South Florida. She was also a Luce Fellow in the University of Notre Dame Computer Science Graduate Program, with a focus on computer vision. Her previous work involved the development of multiple types of content delivery and e-commerce systems, as well as web development for non-profits, including her work for the Durham Literacy Center during her time with America Corps. Her experience with content management and online promotion will help in the decimation of the information provided by this website.
Starlet Harrimon BSN, RN-BC
Starlet graduated with a Bachelor of Science with a major in Nursing from Texas Woman’s University. She also earned her Board Certification in Ambulatory Care Nursing. Since 2015 she has served as the Advanced Lung Disease/ Pulmonary Hypertension Coordinator for Cleveland Clinic Florida. She has a passion for patient care through teaching, providing direct education, and creating educational resources for patients and her peers. Her knowledge and experience with specialty medications, specialty pharmacies & payors is a valuable resource.